Today was clinic day in London, I went with a packed suite case just in case I needed to stay in for iv`s. There have been a few times where I have been caught out needing to go in hospital for iv`s straight from clinic and hay presto I have no Case, if this happens you get given some very fashionable green bottoms and top or a pink nightie that has a big gape in the back oh sooo glam! But here I am at home writing my blog so hopefully another few weeks before I need to go in hospital, for this I must keep up with all my meds and nebulisers to keep my chest as good as possible.
I`v had a gastrostomy / button for 3.1/2 years now but as of tonight no more it will be. I went to clinic nervously because I told my dietician I wanted it out, although not at the ideal weight recommended I just could not do the feeds for reasons I have been trying to get my head around for the last 4 years. The button itself did not bother me except it leaked all the time just bad luck on that part, it was really hard confronting the truth because my dietician is so good and dose everything she can to help and I feel so awful. I just hope I can keep this weight up with out letting it slip or another gastrostomy will be recommended again, so altogether mix feelings.
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